Thursday, September 21, 2017

Our Sunshine

It’s been since January since Liv has been showing us that things were changing with her.  It was at that point that life, and she, felt different.  I now know that we were being prepared for the time that we are walking her through at this very moment. 

We were so very fortunate that we had many years of words, songs, and mostly laughter from our yellow haired girl.  Sadly, those things were eventually lost; but her eyes always showed us that somewhere within, that smile still existed.  She taught us how to listen to her in ways unlike the norm.  Even now, she is telling us exactly what she needs, and we are listening……and listening well.

We are nearing the end of our physical time with Livia.  We are embracing the wait….the hard hard wait.  There is a lot of beauty that we are seeing and creating during this sacred time.  The love that Livia Grace has created in her 10 years of life is shining exuberantly.  My yellow haired girl has always shined like the sun. 

You are my sunshine…..

Please pray for all of us during this time.  We feel your love.  We see your texts, your messages, the photos you share.  We see you, and we love you for all the support you have always given us.  We are praying for your hearts, too.  I hope that when you feel sad or your heart beats a little faster because of what Livia is going through, that you may take that feeling, close your eyes, and think that it’s because of so much love that you are feeling that way.  It’s a gift and a fuel for all of us to love and LIV a little harder today, and the days to come. 









27 comments:

  1. So much love. You are all in so many hearts and minds now, as always. Your strength and wisdom through these times has been, to say the very least, life changing and inspirational. May your faith, and the faith of all of your family and friends be a comfort to you all. May we all continue to LivLife!!!

    ReplyDelete
  2. Kelly,
    My heart aches for you and Jacob. You are so amazing and strong trying to comfort others in this very difficult time for you. Praying for all of you but especially you as Mom, such a difficult road you have been on for quite some time. Your faith is inspirational. We know God has blessed so many
    through Livia's life, her smile, her eyes, her zeal. We have all been taught by God's grace the importance of every day and loving unconditionally. I love you and your family
    so much. xoxo, Ruth

    ReplyDelete
  3. We the Brooks Family, Nic, Adrian and myself send you all loving hugs. Your Liv is a Beautiful girl, may you all find strength and courage for Liv, through your Faith. God Bless you Mr. Hubert & Family. Continued prayers for your Sunshine!

    ReplyDelete
  4. Kelly,
    Tom and I have you all in our prayers. Hoping God keeps you wrapped and embraced in His loving arms through these days and nights. Hugs, prayers and Love.
    Tom and Lori Little

    ReplyDelete
  5. We are praying for your families comfort.

    ReplyDelete
  6. Keeping all of you in our thoughts n prayers ... Always loved seeing that smile when I would visit the schools. Never took the moment to introduce myself but saw you every morning when you mom would drop you off ... You made many that knew you from afar and through your mom's blog remember out blessings many prayers from the Kline's Ali, Hayden and Heather.

    ReplyDelete
  7. God bless you all for the love and strength you share. Prayers always. Kathy Wicks

    ReplyDelete
  8. Bless all of you and prayers for you all. I have never met liv but may god give you all the strength your family needs. Love, prayers and thoughts. Ashley McCartney

    ReplyDelete
  9. Praying for God's strength and His loving arms to hold your sweet family during this sacred time.
    Kelly, you are such an inspiration to SF families and beautiful example of God's love because you share your heart and love so well. Praying for your beautiful mom heart. Hugs to you and sweet Livia.
    Love you (Beth Gibbons)

    ReplyDelete
  10. Something no parent should ever have to experience! May the love, prayers and thoughts embrace your entire family and each person your sweet girl has touched throughout her short life! May you find comfort knowing there is eternal life and while Liv sings, dances and shines down upon your family, one day you will all be together again! Sincere thoughts and prayers to you all

    ReplyDelete
  11. We don't know each other well, but I've followed your journey with Liv for the past few years on social media and see you every so often at the Y. Your clarity of expression of the experience you're living through is, although sad, also beautiful. Thank you for sharing it with us. My best to you and your family not only now but in the future. Heidi

    ReplyDelete
  12. Your family has touched so many, and the demonstration of love that you have for one another is an unforgettable one. How lucky Liv is to have the three of you, and how blessed her presence continues to be for you and all whom she encounters. Though it has been years since I have seen you all in the North Boone hallways, know that I continue to think of you and will pray for comfort in all days to come. Thank you for sharing her story. With love and prayers, Karen Becker

    ReplyDelete
  13. Prayers and hugs for your family

    ReplyDelete
  14. Kelly and Jake,

    Please know that your friends at St. Thomas More are praying for your peace and comfort. You have been an inspiration to so many and your testimony of faith will speak to others long after this difficult time. We love you and are continuing to keep you in our hearts.
    Debbie Pagel

    ReplyDelete
  15. Dear Mr. Hubert:

    You don't know me but I now teach theology at STM. Like you, I am a historian. Your daughter is precious and your words about her beautiful. I once lost a child too. Know that she and you all are in my prayers.
    Ken Howell

    ReplyDelete
  16. Dear Kelly,

    You do not know me, however I saw you every day lovingly dropping Liv off at school or carrying her into your van at the end of the day. Many times I wanted to offer help but I didn't because I didn't know if that would offend you. I'm sorry for that. Every day I thought about your family. Every day I saw you, I thought you were one of the strongest woman I have ever laid eyes on. I still do. I am so deeply sorry that your time with Liv is coming to an end. I can't even pretend to know how that must feel. Please find comfort in the fact that there are many of us in the community who have watched you from afar that are praying for your family. May God keep his hand on you and your family during this most difficult time.

    With love,
    Julie Heidel

    ReplyDelete
  17. Sending love and healing thoughts your way.

    ReplyDelete
  18. The four of you are some of the best people we have ever known. Oh how I wish your time with Liv was longer. The love you two share is sunshine. We love each of you and are praying for a tangible sense of God's nearness, compassion, gentleness and strength. And please ask Liv to save us seats at the girl party she and Syd are throwing!

    ReplyDelete
  19. Prayers of peace with healing, grief with gratitude, holding on with heart, letting go with love. Externally connected.

    ReplyDelete
  20. Praying for you and your darling girl.

    ReplyDelete
  21. No words seem adequate...such a beautiful little girl. Praying for Gods comfort for your family and knowing Liv will be in the presence of our Heavenly Father completely healed...may she run with the angels and laugh as she never has before! Bless you! Cindy Fuller

    ReplyDelete
  22. Kelly and Jake,

    Our prayers are with you, as are the prayers of the STM community. May God's grace be poured out on Liv and your family.

    Tracy Neitzel

    ReplyDelete
  23. I knew Livia for a short time, and I loved her right away! Her smile was contagious and I looked forward every day to pick her up in my little yelow bus! Im truly heart broken to hear that she has passed and my heart goes out to her family! May you fin comfort knowing she is with Jesus! My thoughts and prayers are with uou all! Love, Mrs.Marilyn♡

    ReplyDelete
  24. Livia and this blog has been truly inspirational to me. I have followed your story, from the beginning, ever since I had heard of Livia's condition at church in Homer. Livia has taught me to LIV Life! I was very saddened to hear of her passing over the weekend. What a wonderful angel, heaven has received. Your family is in my thoughts, as well as Livia. And I will remember everyday to LIV Life. Thank you Kelly, and thank you Livia for showing a 31 year old how to truly live and for reaching out and touching so many lives! God Bless you and your entire family and the rest of the Sanfilippo Syndrome community.

    ReplyDelete
  25. You do not know me. I do not know your family, however, your story has forever touched me. As a parent of a child with an uncertain future since birth I feel for you. My heart aches for all those nights of fear when your baby girl was ill. My mind remembers our own struggles and uncertainties through the years. Our story has, so far, had a different ending, yet that does not diminish the knowing I have for your situation. From one parent to another...my very sincerest condolences. I got through many days of my daughter's toughest times by KNOWING God was there to take her if she was unable to carry on. That is a certainty that kept me strong. Still keeps me strong. I know, I KNOW, in my heart that your precious bundle is sitting with Jesus. No pain, no fear, no more struggles, only LOVE...waiting until you shall meet again. I shall be honored to meet her in the Kingdom of Heaven. She already knows the joy and love she shared in this world. Let your family find Peace when mourning time has past. Keeping her memory alive in the times remembered when her joy was bright as the sun...as you said, she is the sunshine. May God Bless you and keep you. Renee Bryan & family

    ReplyDelete
  26. Kelly, Jake and Finley,
    My heart goes out to you all on your loss of your precious Livia Grace! Words are never adequate enough in times such as this. I can't imagine what you're going through. Please know our thoughts and prayers are with you. Peace and grace to you all! May the love of the living Christ and all your friends and family give you comfort. ❤️

    ReplyDelete