The news we received in Minnesota was very unwelcome. We have educated ourselves about MPS and what Liv may face. Because of this, we are not naive to what we are facing, it's just hearing it out loud. Knowing that these facts are really true to our child's life. Hearing that Livia is digressing faster than what we expected, it's horrifying.
45 months, that's how long we've known these "facts." Just shy of 4 years. We've settled into our "typical." Our life. In the beginning months, I mourned what I wasn't going to have with Livia. I dreamed of softball, girl scouts, music lessons, graduation, her wedding, her children. The majority of these will never happen, and I've excepted that. Knowing what I'm not going to get to experience with her makes me cherish what I do get to experience with her, and Finley, even more. With a nightmare of a diagnosis, I've made the decision to grasp a hold of every single moment, every single accomplishment, and every single experience that we get to have together. Knowing that someday, I will only have days filled with memories, I want to make those memories for the future a comfort. A reassurance that no matter how many "months" we get with Livia, we smiled through them and we made them incredible.
Breathe your loves ones in and find a reason to smile today.
Moments that make me smile, that I want to share with you. xoxoxoxoxo
|I see you!|
|Liv lost her second tooth! I pulled it, and it made me cry.|
|What kid doesn't like to jump on a bed?|
|Ring around the Rosy with Knuffle Bunny|